ragged edge magazine online

LIFE from the Ragged Edge

A sixth sense for discrimination Organizations serving disabled people might seem a funny place to encounter disability discrimination. But JENNY CARLTON, who found hiring personnel dropping her after they talked to her, says that's exactly what happened when people couldn't get past her uneven speech patterns. MORE. Posted Apr. 7, 2005.

Rest in peace, Terri Schiavo The woman at the center of a 15-year right-to-die, right-to-life battle died on Thursday, March 31. She had held onto life, without food or water, since March 18. Her death came hours after the last legal appeal had been rebuffed. MORE. Posted Mar. 31, 2005.

Understanding 'Persistent Vegetative State' (in Media Circus)
Articulating our perspective to progressives (in Focus)
"We Love Our Tubes!" (in D.R. Nation news)
Death Watch: Terri Schiavo (in Life from the Ragged Edge)
Some Facts in This Matter Of Starving Terri Schiavo (by John Kelly)
Disability groups seek legal protection for 'incapacitated' people (in Focus)
Terri Schiavo: Better Dead Than... (by Carol Cleigh)
Feminists and Terri Schiavo (by Ingrid Tischer)
LINKS TO COVERAGE from DisAbled Women's Network Ontario (DAWN)

A Passion Play This past Thursday, Philadelphia ADAPT had a funeral for ADAPT activist Mark. He had been a quadriplegic for 31 years, writes JIMMI SHRODE. "Should have been allowed to die," people would say when they saw Mark. MORE. Posted March 26, 2005.

Mad as hell -- and fighting for our lives In every state today, it seems, budget cuts are reducing the money set aside for alternatives to institutionalization, writes ZEN GARCIA. "As many of us across the country struggle to manage the impact these cuts will make upon our lives, thousands of people returning from Iraq with lifelong disabilities will find themselves pressed by the system they just fought to defend." MORE.Posted Mar. 15, 2005.

Michael Moore-ing the Oscars Leafleting theaters showing "Million Dollar Baby" was the fallback position. But JOHN KELLY and his troupe of Boston protesters had it all worked out to crash the Oscars banquet at the Four Seasons Hotel. Security goons, intrigue and good ol' disability discrimination are all part of the story. MORE. Posted Mar. 3, 2005.

Trouble brewing in Virginia The Virginia Department of Mental Health, Mental Retardation, and Substance Abuse Services was allocated over $31 million for those on its Urgent Waiting List. writes MICHAEL RAGLAND, but it only spells trouble if the state fails to deal with its serious problems with its housing and program options. MORE. Posted Feb. 19, 2005.

No Handicapped in Heaven? There you are, lying in your coffin. They're playing "I Can See for Miles and Miles." "Blind Johnny Can See Now!" says the eulogist, somebody you've never met. Is it really like this? JOHNNY CRESCENDO has a few ideas about a funeral service that is a little bit more, uh, fitting. MORE. Posted Nov. 23, 2004.

Remembering The Spotted Owl: Activism And Terri Schiavo During the 1980s in the Pacific Northwest, environmental activists focused their campaign, and hung their hopes, on the fate of the spotted owl for a very practical reason: Americans like owls. Inclusion Daily's DAVE REYNOLDS wonders if Terri Schiavo may be our spotted owl. READ ESSAY. Posted Oct., 2004.

Roll Models and the Roiling of Normalcy "I didn't want to walk by her in the hall, and when I had to, when I couldn't avoid it, I walked as close to the wall as I could, away from Gertrude," writes K. D. LAIRD. "I didn't know who she really was, and I never found out." But he started thinking about her again, he writes, "after I nearly passed out at a buddy's house." MORE. Posted Aug. 18, 2004.

My Grand Deception "Only after joining the disability rights movement did I become aware of the shocking reality that 70 percent of Americans with disabilities are unemployed," writes college professor ED EAMES. "But even without knowing that, when I learned I would soon be totally blind, I knew that keeping my job and ensuring job security must be my major mission." READ ARTICLE. Posted July 5, 2004.

Blind Pew Walks Everywhere in Columbus, Ohio "Walking the shoulder of a road, moving slowly with a cane, I feel like Robert Louis Stevenson's Blind Pew -- I'm the blind man who talks to himself as he makes his way to the supermarket," writes STEPHEN KUUSISTO. "It's no exaggeration to say the world of the non-driver is the wayside ditch. My progress is checkered with broken sidewalks that stop as the road wends toward the fast food places and the malls." READ ESSAY. Posted June, 2004.

The Smithsonian Shuttle Incident "Five, ten, fifteen minutes passed. It was clear the lift was not going to work. There was no power to the lift. Numerous calls to the supervisor were made. Other passengers were consulted and passersby gawked at the unfolding scene. Finally, I was asked, 'Can you walk at all?'" WILLIAM J. PEACE then did something he would have never done had his 12-year-old son not been with him. Did he do the right thing? Even now, he's not sure. READ STORY. Posted April, 2004.

Mothers' March When someone from the March of Dimes called her house asking for a volunteer to collect donations door to door, writes CASS IRVIN, "a little angel and a little devil fussed at each other in my brain. Angel: You can't say anything to her! She can't see you. She doesn't know!" MORE. Posted April 5, 2004.

The Crip Who Left Compassion and Welfare Behind "I made my daredevil leap one grey, chilly October day six years ago," writes BJÖRN LJUNGSTROM. "I was leaving behind my beloved Sweden. I knew I was saying goodbye to what is one truly compassionate welfare state." MORE. Posted March 29, 2004.

Gynstory "Lynn and I were conscientious, liberated women of the Seventies," writes CASS IRVIN. "We wanted to experiment with sex and not get pregnant. We were not entirely sure we were ready for love yet but we were sure we were not ready for babies. We were going to get The Pill." MORE. Posted March 22, 2004.

A White-Collar Crime It's difficult to find a part-time job that lets you work as a professional or paraprofessional for the limited amount of money you're allowed to earn on SSDI. But you need such a job if you're ever going to get off "disability," writes EUGENE SANDERS. So what's the answer? READ ARTICLE. Posted March 4, 2004.

Disability Shame Speaks: "The only way people can be free of me is to acknowledge what hurts them, to stop blaming themselves for disability and physical changes, to stand up against myths and stereotypes from a position of strength and honesty.And you know what? They won't do it." Read LAURA MINGES' dramatic monologue. MONOLOGUE. Posted February 23, 2004.

Letter From America: 'Have a nice day -- how ya gonna pay?' In England, the National Health Service doctor held my daughter's heart in his hand for 45 minutes and saved her life, writes British writes singer/songwriter JOHNNY CRESCENDO. "We've just moved to the USA. My wife is American and Danielle is 3. One day she will need major surgery again." What happens here, he asks? "In the end I suspect we will just pay any way we can. After all isn't that how capitalism really works?" READ ARTICLE. Posted Feb. 9, 2004.


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